Tuesday, May 7, 2013

I AM NOW ON FACEBOOK!!

I now have a Facebook page to communicate food allergy information and happenings.  Please click here and "like" my page to get updates: https://www.facebook.com/KansasCityNorthlandFoodAllergySupportGroup

If you don't have Facebook, I will still update this blog from time to time but the best place to get information is via e-mail at jennytgiles@gmail.com, so please send me your e-mail address!

Tuesday, April 10, 2012

Food Allergy Awareness Walk in Kansas City!!

What is FAAN's mission? To raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis.

Why We Walk

  • We walk to fund food allergy awareness, advocacy, education, and research programs.
  • We walk to provide understanding, hope, and an opportunity for those affected by food allergies to network.
  • We walk to save a life!
So let's walk, Kansas City!

When:   Saturday, September 15, 2012
Where:  Theater in the Park Pavilion, 7710 Renner Road, Shawnee, KS 66218

Click here to register yourself and/or to create a team:
http://www.foodallergywalk.org/site/TR/2012Walks/2012Walks?pg=entry&fr_id=2176

Thursday, February 9, 2012

Junior Iron Chef Contest!

Junior Iron Chef Contest!
April 14, 2012 at Union Station

Junior Iron Chef, hosted by the Asthma and Allergy Foundation of America, Greater Kansas City Chapter (AAFA-KC), is a metro-wide competition that gives children an opportunity to experience healthy eating through the preparation and cooking of nutritious foods, highlighting food allergies. In this competition, teams of middle or high school students are invited to create delicious and creative dishes using healthy ingredients. Recipes should be replicable and will have a chance to be featured in the 2012 Junior Iron Chef Cook Book. Three awards will be given in each age group: Best in Show, Most Creative and Best Food Allergy Recipe. 

Monday, August 22, 2011

Stay Vigilant

It is so hard to tote an Epipen around 24/7 isn't it?  Especially when your child hasn't had a reaction in several years.  But it is crucial to have it when an accident happens.  The recent deaths of young people from food allergies serves as a somber reminder.  IN EACH CASE, THEY DID NOT HAVE ONE.  Click here to hear their stories:  http://www.wsbtv.com/news/28919309/detail.html   http://www.suntimes.com/2966858-417/reaction-according-allergic-allergy-examiner.html 

Wednesday, April 13, 2011

FREE Food Allergy Symposium at Truman Medical Center East, May 14th

The theme is "What to Expect." Invited speakers include a school nurse, a life flight nurse, ER nurse, and an allergist. Click here to learn more and to register for this informative event. Want to carpool? Let me know. http://facstkc.weebly.com/

Food Allergy Walk in KC, September 10th

Let's go walking!! This event is so much fun for me and my family because we get to meet other families who live like we do. Click on this link to register, create a walk team, join my team, or to donate. http://www.foodallergywalk.org/site/TR/2011Walks/2011Walks?fr_id=1955&pg=entry

Tuesday, January 25, 2011

Peanut Free Seats at the K!!

The Royals have once again graciously offered children with peanut allergies a safe place to watch the games at the K!! Just like last year, the tickets are $36.00 each and include a suite just for us. This is a great opportunity for our kids to meet others just like themselves. Contact Alex at the number below for tickets. Let's fill up these suites!! Jenny Sunday 5/8 Tuesday 5/17 Wednesday 6/8 Sunday 7/24 For tickets contact: Alex Janowiak Premium Services Coordinator Kansas City Royals p: 816.504.4434

Thursday, January 20, 2011

Staying Vigilant

Sometimes I get tired of being so vigilant all of the time. I also get tired of facing people who think my vigilance in petty. This is why I find sharing stories so important because it keeps me focused on why I have to work hard and stay focused. The story of the young girl in Chicago breaks my heart, scares me, and at the same time, stirs me into action. These stories serve to remind and to reassure that the actions taken by parents and loved ones of children with life-threatening allergies are not without warrant. We have to stay vigilant no matter how silly others try to make us feel. I am also grateful that I have my food allergy friends who understand and share my feelings. Whether we meet face to face or simply e-mail periodically, just knowing you are out there keeps me strong.

Sunday, September 26, 2010

Food Allergy Goblin

As Halloween approaches I am once again grateful for learning about the "Peanut Goblin" and wanted to share this idea with everyone who is new to trick-or-treating with a food allergy. You may have the "Milk Goblin" or the "Soy Goblin" come to your house depending on your child's allergy. At our house the "Peanut Goblin" is a creature that LOVES peanut-containing treats and candy and if you leave him some, he'll leave you a present in exchange.

We let my daughter and her little sister trick-or-treat with their friends and when we get home, we dump their candy out and toss all those containing peanuts inside the "Peanut Goblins" bag. They then place the bag on the front door step just before bed. In the morning, the bag of candy has been replaced with a present for each girl.


It is so much fun! It definitely takes the sting out of taking candy away.

Last year we went to an event where a beautiful chocolate candy containing peanuts was passed out. Instead of getting upset, my daughter said, "Wow, the Peanut Goblin is going to love this one!"

I wish each of you and your families a happy and safe Halloween.

~ Jenny

Thursday, May 20, 2010

Food Allergy Walk in KC!

The FAAN Walk for Food Allergy - Moving Toward a Cure is a 2 mile walk taking place September 25th at the Mid-America Sports Complex, Baseball Fields Parking Lot, 20000 Johnson Drive, Shawnee, KS. Check in is at 9am walk begins at 10am.

Let's walk together: join the Kansas City Northland Food Allergy Support Group Team!!

Check out FAAN's site for more info and to sign-up: http://www.foodallergywalk.org/site/TR/2010Walk/2010Walks?fr_id=1650&pg=entry

Peanut Free Suite at the "K"!

WOW!! Kauffman stadium has arranged a peanut free area for three game dates. The dates are: May 25, June 15 and July 21. A suite has been reserved on these dates to accommodate families that have a member with peanut allergies to come watch a baseball game safely.

I believe this is a first!! I think it would be great to fill this suite so they see the important need for this awesome service.

Tickets can be purchased through Alex Janowaik with a Credit Card over the phone and are at the much discounted price of $29 each. (Children under 32” do not require a ticket).


Alex Janowiak

Premium Services Coordinator | Kansas City Royals

p: 816.504.4434 | f: 816.504.4142

Kauffman Stadium | One Royal Way | Kansas City, MO 64129

Wednesday, March 24, 2010

Food Allergy Awareness Week

May 9-15, 2010 is Food Allergy Awareness Week. FAAN has many activities and suggestions that you may want to use. Check it out:

http://www.foodallergy.org/section/food-allergy-awareness-week1

Monday, February 22, 2010

Spangler Candy Company Reaches Out to Allergy Community

Wow - what a great allergen-free brochure the Spangler Candy Company created to reach out to those of us with food allergy and celiac issues. Check it out here: http://www.spanglercandy.com/spangler/newspr/allergens.php
Let's buy their stuff!!

Tuesday, January 5, 2010

FAAN's New Site

FAAN updated it Website. It is much easier to navigate and much prettier to look at - check it out.

http://www.foodallergy.org

Tuesday, November 10, 2009

NEW! FAAN's College Network

Newly launched: FAAN's College Network (http://www.faancollegenetwork.org/) a web-based program that allows prospective students to research the food allergy management policies of colleges and universities across the nation.

Contact information for representatives from those colleges is readily available on the website, as well as contact information for “Student Ambassadors,” who are current college students with food allergies.

Thursday, October 29, 2009

The Peanut Goblin

As Halloween approaches I am once again grateful for learning about the "Peanut Goblin" and wanted to share this idea with everyone who is new to trick-or-treating with a food allergy. You may have the "Milk Goblin" or the "Soy Goblin" come to your house depending on your child's allergy. At our house the "Peanut Goblin" is a creature that LOVES peanut-containing treats and candy and if you leave him some, he'll leave you a present in exchange.

We let my daughter and her little sister trick-or-treat with their friends and when we get home, we dump their candy out and toss all those containing peanuts inside the "Peanut Goblins" bag. They then place the bag on the front door step just before bed. In the morning, the bag of candy has been replaced with a present for each girl.


It is so much fun! It definitely takes the sting out of taking candy away.

Last year we went to an event where a beautiful chocolate candy containing peanuts was passed out. Instead of getting upset, my daughter said, "Wow, the Peanut Goblin is going to love this one!"

I wish each of you and your families a happy and safe Halloween.

~ Jenny

Tuesday, October 13, 2009

Cool Food Allergy Video by Nick News

http://www.nick.com/videos/clip/allergic-to-my-world-clip.html

Movie Depicts Peanut Allergy Reaction

FYI - The animated movie, "Cloudy with A Chance of Meatballs" includes a peanut allergy reaction. Check out what FAAN has to say. My 8-year old daughter saw it and thought it was kind of cool because the character got an Epi shot and was fine and her friends took care of her .. I haven't seen it.

http://www.foodallergy.org/media/HotTopics/cloudymeatballs.html

Next Meeting!

We meet periodically in the evenings at Panera Bread in Liberty (8580 Church Rd).