tag:blogger.com,1999:blog-12201534228992814632024-03-18T21:09:15.622-07:00Kansas City Northland Food Allergy Support GroupWelcome to the Kansas City Northland Food Allergy Support Group.
We are a group of parents who meet periodically but share via e-mail and Facebook to provide one another with information, support, resources, stories, challenges and successes about caring for children with food allergies.
We currently meet periodically at Panera Bread in Liberty, Missouri (8580 Church Rd.) To join our mail list, please contact Jenny Giles at jennytgiles@gmail.com or visit us on Facebook!
NEXT MEETING: TBAJennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-1220153422899281463.post-6361261623692356522013-05-07T09:16:00.003-07:002015-06-16T08:37:47.379-07:00I AM NOW ON FACEBOOK!!I now have a Facebook page to communicate food allergy information and happenings. Please click here and "like" my page to get updates: <a href="https://www.facebook.com/KansasCityNorthlandFoodAllergySupportGroup">https://www.facebook.com/KansasCityNorthlandFoodAllergySupportGroup</a><br />
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If you don't have Facebook, I will still update this blog from time to time but the best place to get information is via e-mail at jennytgiles@gmail.com, so please send me your e-mail address!Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-6523632555857835052012-08-30T06:42:00.003-07:002012-08-30T06:42:59.288-07:00NPR Harvest Media story on the possible link between GMOs and food allergiesAvery and I were interviewed recently about life with food allergies. Check out the story here: <a href="http://www.harvestpublicmedia.org/article/1390/link-or-no-link-controversy-simmers-over-allergies-and-genetically-modified-food/5">http://www.harvestpublicmedia.org/article/1390/link-or-no-link-controversy-simmers-over-allergies-and-genetically-modified-food/5</a><br />
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<img alt="article_image" src="http://harvestpublicmedia.org/sites/default/files/imagecache/featured_image/IMG_2109.JPG" />Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-72664123646711674112012-04-10T08:27:00.000-07:002012-04-10T08:27:59.059-07:00Food Allergy Awareness Walk in Kansas City!!What is FAAN's mission? To raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis.<br />
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<h3>Why We Walk</h3><ul><li>We walk to fund food allergy awareness, advocacy, education, and research programs. </li>
<li>We walk to provide understanding, hope, and an opportunity for those affected by food allergies to network. </li>
<li>We walk to save a life! </li>
</ul><span style="color: black; font-size: large;">So let's walk, Kansas City!</span><br />
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<span style="color: red; font-size: large;"><strong>When: Saturday, September 15, 2012</strong></span><br />
<span style="color: red; font-size: large;"><strong>Where: Theater in the Park Pavilion, 7710 Renner Road, Shawnee, KS 66218</strong></span><br />
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Click here to register yourself and/or to create a team:<br />
<a href="http://www.foodallergywalk.org/site/TR/2012Walks/2012Walks?pg=entry&fr_id=2176">http://www.foodallergywalk.org/site/TR/2012Walks/2012Walks?pg=entry&fr_id=2176</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-76948134985230778192012-02-09T07:09:00.000-08:002012-02-09T07:09:42.360-08:00Junior Iron Chef Contest!<a href="http://www.juniorironchefkc.com/">Junior Iron Chef Contest!</a><br />
April 14, 2012 at Union Station<br />
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Junior Iron Chef, hosted by the Asthma and Allergy Foundation of America, Greater Kansas City Chapter (AAFA-KC), is a metro-wide competition that gives children an opportunity to experience healthy eating through the preparation and cooking of nutritious foods, highlighting food allergies. In this competition, teams of middle or high school students are invited to create delicious and creative dishes using healthy ingredients. Recipes should be replicable and will have a chance to be featured in the 2012 Junior Iron Chef Cook Book. Three awards will be given in each age group: Best in Show, Most Creative and Best Food Allergy Recipe. <a href="http://www.juniorironchefkc.com/teams/guidelines"></a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-21757123806506146922011-08-22T08:42:00.000-07:002011-08-22T08:42:54.829-07:00Stay VigilantIt is so hard to tote an Epipen around 24/7 isn't it? Especially when your child hasn't had a reaction in several years. But it is crucial to have it when an accident happens. The recent deaths of young people from food allergies serves as a somber reminder. IN EACH CASE, THEY DID NOT HAVE ONE. Click here to hear their stories: <a href="http://www.wsbtv.com/news/28919309/detail.html">http://www.wsbtv.com/news/28919309/detail.html</a> <a href="http://www.suntimes.com/2966858-417/reaction-according-allergic-allergy-examiner.html">http://www.suntimes.com/2966858-417/reaction-according-allergic-allergy-examiner.html</a> Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-46789134894910412412011-04-13T09:35:00.000-07:002011-04-13T09:41:45.251-07:00FREE Food Allergy Symposium at Truman Medical Center East, May 14thThe theme is "What to Expect." Invited speakers include a school nurse, a life flight nurse, ER nurse, and an allergist. Click here to learn more and to register for this informative event. Want to carpool? Let me know. <a href="http://facstkc.weebly.com/">http://facstkc.weebly.com/</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-70653291908087131152011-04-13T09:06:00.000-07:002011-04-13T09:31:26.942-07:00Food Allergy Walk in KC, September 10th<span style="color:#ff0000;">Let's go walking!! </span>This event is so much fun for me and my family because we get to meet other families who live like we do. Click on this link to register, create a walk team, join my team, or to donate. <a href="http://www.foodallergywalk.org/site/TR/2011Walks/2011Walks?fr_id=1955&pg=entry">http://www.foodallergywalk.org/site/TR/2011Walks/2011Walks?fr_id=1955&pg=entry</a> <strong><a href="http://www.foodallergywalk.org/site/TR/2011Walks/2011Walks?fr_id=1955&pg=entry"></a></strong><strong><a href="http://www.foodallergywalk.org/site/TR/2011Walks/2011Walks?fr_id=1955&pg=entry"></a></strong>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-7312437037992556562011-01-25T06:33:00.000-08:002011-04-13T09:32:17.679-07:00Peanut Free Seats at the K!!The Royals have once again graciously offered children with peanut allergies a safe place to watch the games at the K!! Just like last year, the tickets are $36.00 each and include a suite just for us. This is a great opportunity for our kids to meet others just like themselves. Contact Alex at the number below for tickets. Let's fill up these suites!! Jenny Sunday 5/8 Tuesday 5/17 Wednesday 6/8 Sunday 7/24 For tickets contact: Alex Janowiak Premium Services Coordinator Kansas City Royals p: 816.504.4434Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-70729769692509758172011-01-20T14:55:00.000-08:002011-01-20T15:07:23.780-08:00Staying VigilantSometimes I get tired of being so vigilant all of the time. I also get tired of facing people who think my vigilance in petty. This is why I find sharing stories so important because it keeps me focused on why I have to work hard and stay focused. The story of the young girl in Chicago breaks my heart, scares me, and at the same time, stirs me into action. These stories serve to remind and to reassure that the actions taken by parents and loved ones of children with life-threatening allergies are not without warrant. We have to stay vigilant no matter how silly others try to make us feel. I am also grateful that I have my food allergy friends who understand and share my feelings. Whether we meet face to face or simply e-mail periodically, just knowing you are out there keeps me strong.Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-86860626113000709372010-10-01T11:01:00.000-07:002010-10-01T11:04:36.529-07:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiJUHFMmx1X0EHwM7KMcbrxlXLyhGWe3Sfix6oFYg4lmxT-uHjLga197R0w4n6UydGf_S8X9d1m0tOKo4gVyfaVsbpxm1gTm0bmU6NtFATywaHDOqRz73ZBjCXu5Jj-McJ2wTqmOUjWyp4/s1600/IMG00196.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiJUHFMmx1X0EHwM7KMcbrxlXLyhGWe3Sfix6oFYg4lmxT-uHjLga197R0w4n6UydGf_S8X9d1m0tOKo4gVyfaVsbpxm1gTm0bmU6NtFATywaHDOqRz73ZBjCXu5Jj-McJ2wTqmOUjWyp4/s320/IMG00196.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5523140073383066306" /></a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-50034496864598407782010-09-26T08:25:00.000-07:002010-09-26T08:26:49.146-07:00Food Allergy GoblinAs Halloween approaches I am once again grateful for learning about the "Peanut Goblin" and wanted to share this idea with everyone who is new to trick-or-treating with a food allergy. You may have the "Milk Goblin" or the "Soy Goblin" come to your house depending on your child's allergy. At our house the "Peanut Goblin" is a creature that LOVES peanut-containing treats and candy and if you leave him some, he'll leave you a present in exchange. <br /><br />We let my daughter and her little sister trick-or-treat with their friends and when we get home, we dump their candy out and toss all those containing peanuts inside the "Peanut Goblins" bag. They then place the bag on the front door step just before bed. In the morning, the bag of candy has been replaced with a present for each girl. <br /><br /><br />It is so much fun! It definitely takes the sting out of taking candy away. <br /><br />Last year we went to an event where a beautiful chocolate candy containing peanuts was passed out. Instead of getting upset, my daughter said, "Wow, the Peanut Goblin is going to love this one!" <br /><br />I wish each of you and your families a happy and safe Halloween. <br /><br />~ JennyJennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-9803875217429631772010-05-20T15:40:00.000-07:002010-05-20T15:47:10.954-07:00Food Allergy Walk in KC!The FAAN Walk for Food Allergy - Moving Toward a Cure is a 2 mile walk taking place September 25th at the Mid-America Sports Complex, Baseball Fields Parking Lot, 20000 Johnson Drive, Shawnee, KS. Check in is at 9am walk begins at 10am. <br /><br />Let's walk together: join the Kansas City Northland Food Allergy Support Group Team!!<br /><br />Check out FAAN's site for more info and to sign-up: <a href="http://http://www.foodallergywalk.org/site/TR/2010Walk/2010Walks?fr_id=1650&pg=entry">http://www.foodallergywalk.org/site/TR/2010Walk/2010Walks?fr_id=1650&pg=entry</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-47398634640102881442010-05-20T15:00:00.000-07:002010-05-20T15:30:11.069-07:00Peanut Free Suite at the "K"!WOW!! Kauffman stadium has arranged a peanut free area for three game dates. The dates are: May 25, June 15 and July 21. A suite has been reserved on these dates to accommodate families that have a member with peanut allergies to come watch a baseball game safely.<br /><br />I believe this is a first!! I think it would be great to fill this suite so they see the important need for this awesome service. <br /><br />Tickets can be purchased through Alex Janowaik with a Credit Card over the phone and are at the much discounted price of $29 each. (Children under 32” do not require a ticket). <br /><br /><br />Alex Janowiak<br /><br />Premium Services Coordinator | Kansas City Royals<br /><br />p: 816.504.4434 | f: 816.504.4142 <br /><br />Kauffman Stadium | One Royal Way | Kansas City, MO 64129Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-33701953338723107932010-03-24T12:20:00.000-07:002010-03-24T12:25:38.440-07:00Food Allergy Awareness WeekMay 9-15, 2010 is Food Allergy Awareness Week. FAAN has many activities and suggestions that you may want to use. Check it out:<br /><br /><a href="http://www.foodallergy.org/section/food-allergy-awareness-week1">http://www.foodallergy.org/section/food-allergy-awareness-week1</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-64417652378517739322010-02-22T19:04:00.000-08:002010-02-22T19:11:44.825-08:00Spangler Candy Company Reaches Out to Allergy CommunityWow - what a great allergen-free brochure the Spangler Candy Company created to reach out to those of us with food allergy and celiac issues. Check it out here: http://www.spanglercandy.com/spangler/newspr/allergens.php <br />Let's buy their stuff!!Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-67912627447923548902010-01-05T10:40:00.000-08:002010-01-05T10:42:06.394-08:00FAAN's New SiteFAAN updated it Website. It is much easier to navigate and much prettier to look at - check it out.<br /><br />http://www.foodallergy.orgJennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-15922941917577823532009-11-10T10:52:00.000-08:002009-11-10T10:57:15.887-08:00NEW! FAAN's College NetworkNewly launched: FAAN's College Network (http://www.faancollegenetwork.org/) a web-based program that allows prospective students to research the food allergy management policies of colleges and universities across the nation.<br /><br />Contact information for representatives from those colleges is readily available on the website, as well as contact information for “Student Ambassadors,” who are current college students with food allergies.Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-46466128783416114652009-10-29T06:13:00.000-07:002009-10-29T06:23:48.729-07:00The Peanut Goblin<span style="font-family:lucida grande;">As Halloween approaches I am once again grateful for learning about the "Peanut Goblin" and wanted to share this idea with everyone who is new to trick-or-treating with a food allergy. You may have the "Milk Goblin" or the "Soy Goblin" come to your house depending on your child's allergy. At our house the "Peanut Goblin" is a creature that LOVES peanut-containing treats and candy and if you leave him some, he'll leave you a present in exchange. </span><br /><span style="font-family:lucida grande;"></span><br /><span style="font-family:lucida grande;">We let my daughter and her little sister trick-or-treat with their friends and when we get home, we dump their candy out and toss all those containing peanuts inside the "Peanut Goblins" bag. They then place the bag on the front door step just before bed. In the morning, the bag of candy has been replaced with a present for each girl. </span><br /><span style="font-family:lucida grande;"></span><br /><span style="font-family:lucida grande;"></span><br /><span style="font-family:lucida grande;"> It is so much fun! It definitely takes the sting out of taking candy away. </span><br /><span style="font-family:lucida grande;"></span><br /><span style="font-family:lucida grande;">Last year we went to an event where a beautiful chocolate candy containing peanuts was passed out. Instead of getting upset, my daughter said, "Wow, the Peanut Goblin is going to love this one!" <br /><br />I wish each of you and your families a happy and safe Halloween. <br /><br />~ Jenny</span>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-55813360727874954472009-10-13T09:32:00.000-07:002009-10-13T09:33:10.822-07:00Cool Food Allergy Video by Nick News<a href="mhtml:%7BBF3625C5-A3F8-44CA-80E8-EA6A041AE776%7Dmid://00000892/!x-usc:http://www.nick.com/videos/clip/allergic-to-my-world-clip.html">http://www.nick.com/videos/clip/allergic-to-my-world-clip.html</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-79464970271125005882009-10-13T09:30:00.001-07:002009-10-13T09:32:15.066-07:00Movie Depicts Peanut Allergy ReactionFYI - The animated movie, "Cloudy with A Chance of Meatballs" includes a peanut allergy reaction. Check out what FAAN has to say. My 8-year old daughter saw it and thought it was kind of cool because the character got an Epi shot and was fine and her friends took care of her .. I haven't seen it.<br /><br /><a href="http://www.foodallergy.org/media/HotTopics/cloudymeatballs.html">http://www.foodallergy.org/media/HotTopics/cloudymeatballs.html</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-1128192912435354922009-09-11T12:08:00.001-07:002009-09-11T12:10:38.945-07:00Have any of you heard of this?This is an interesting concept but I don't know enough about it to comment on it. It is an application you can download on your phone that reviews top fast food restaurants menu's and screens them for your specific allergy. Sounds interesting .. ..check it out here:<br /><br /><a href="http://www.allergyfreepassport.com/apps/iCanEatOnTheGo.html">http://www.allergyfreepassport.com/apps/iCanEatOnTheGo.html</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-37066458324831434442009-08-10T09:59:00.000-07:002009-08-10T10:03:54.287-07:00Food Allergy Action PlanIt's that time of the year to get your allergist to complete and/or update your <span style="color:#cc0000;">Food Allergy Action Plan.</span> I use mine everywhere - in with my Epi-pens, one with the teacher, nurse, cheerleading coach, babysitter folder, etc. Click here to download it: <a href="http://www.foodallergy.org/actionplan.pdf">http://www.foodallergy.org/actionplan.pdf</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-70050319899877268432009-07-23T05:29:00.000-07:002009-07-23T05:36:21.898-07:00Family Asthma and Allergy Education Day<strong><span style="color:#ff0000;">Mark your calenders:</span></strong> Saturday, March 6, 2010 is the 15th Annual Family Asthma and Allergy Education Day. This is an interactive opportunity for families to learn about asthma and allergies and how to control the affects on their lives. <a href="http://www.aafakc.org/">Check out more information on their website!</a>Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-80615855353596531962009-07-14T14:45:00.000-07:002009-08-03T13:43:54.217-07:00New MembersIt seems like so much is going on in the food allergy world. I get e-mails daily about camps, surveys, trainings, research, new books, new legislation, etc. It is fantastic to see that the community is really getting connected. We need to get Kansas City food allergy folks connected somehow so we can have a much larger voice -- that would be AWESOME!<br /><br />I've also been contacted by several newly diagnosed familes who are interested in talking to us and plan to come to our gatherings. See you soon.Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.comtag:blogger.com,1999:blog-1220153422899281463.post-83363967830680250302009-03-31T08:57:00.000-07:002009-03-31T09:05:12.671-07:00In The NewsA reporter for the St. Joseph Press called last week and asked me some questions about living with food allergies for an article she was writting. The article was published today: <a href="http://www.stjoenews.net/news/2009/mar/31/allergies-change-everything/?diem">http://www.stjoenews.net/news/2009/mar/31/allergies-change-everything/?diem</a><br /><br />Also, Avery received her "<em>Food Allergy News for Kids</em>" last night and her picture and comments were included. She is very excited to show her friends at school. FAAN doesn't include the Newsletter on their Website so I took a picture of it.Jennyhttp://www.blogger.com/profile/13000659405423606775noreply@blogger.com